Home Love just being me

little gold emily This is the story of our little gold Emily came into the world on April 30, 2010. She has a rare and severe epilepsy syndrome, malignant migrating partial seizures in infancy (MPEI). Hope with this reaching out to family, friends and acquaintances about Emily`s everyday. And perhaps others with the same diagnosis or other serious rare disorders, may find solace in our narratives about Emily. She had a tough start in life, when she first came home from the hospital nine weeks old. When the blog opened in January 2011, Emily has been almost nine months, mainstays with several hospital stays behind. Enjoying themselves now home with his family mainstays surrounded by wooden mainstays proud big sisters and mom and dad enjoying every day with his little gold
Home Love just being me" Adams matkassa OTHER MPEI CHILDREN'S STORIES Emily as a model of Linus Care Facts about diagnosis MPEI LECTURE Life and wait grief NONE OF US HAVE ANY WARRANTY FOR CHRISTMAS EMILY SO FAR TOO YOUNG ...
When I was in Spain at Easter I also bought new bedding to Lillegull <3 There she can not get enough of, when it replaced, wear and washed frequently. Fell for a colorful this time, although I basically like the most subtle colors on linen. But this was so festive, with lovely colors mainstays and slightly different pattern. A mixture mainstays of sunflowers, flowers and small fairies in different shapes:-) Cost almost nothing on sale for sheets, pillow and duvet covers. 20 euros for all three parts - and of course on ZARA HOME:-)
Emily is in great form at the moment, after a little uneasy morning. Might have something that she would like to sleep longer than at 5. But not so easy to always find tranquility and fall asleep ... A lovely Sunday when in standby, with belated birthday visit to Grandma as age yesterday:-) But yesterday were all busy on each edge. Rebecca and Dad worked, Victoria has been with aunt and uncle in by`ni weekend with grand-cousin mainstays Lise (large stately and very good for her to be a bit away from us and the family) and Nikita and I was in Oslo yesterday mainstays with good friends w / kids and roared on our common mainstays childhood running Holmenkollen relay:-) (NOW I said it right girls! He - he:-) I actually mistook yesterday mainstays rides with a marathon huh huh, yeah yeah:-)) A delightful Saturday. Incredible coziness to see her friend again our who emigrated to Alesund due. love <3
Otherwise there will be planning for both 18 anniversary mainstays to Rebecca who is coming Wednesday:-) And on May 17th. This week tend to be hectic every year:-) Mandatory almost daily driving practice for father in the house too - and writing is Victoria on the way home. It will be good to get her back home:-) For which she usually say: AWAY BUT GOOD HOME BEST:-)
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